Huge strides have been made in understanding of the condition in recent years and research continues to be carried out to push this understanding forward further and develop more and more effective treatments for the condition.
The top Fibro experts consider that Fibro is "eminently treatable" (Daniel Clauw MD, August 2008).
With effective treatment, patients with Fibro can improve, sometimes significantly. Even those patients who have multiple health conditions can find that effective treatment of their Fibro makes a huge difference to their lives.
Many patients, in the UK especially, struggle to get a timely diagnosis and effective treatment. However, this does not mean that effective treatments do not exist and FibroAction is working to improve access to these treatments.
Getting Fibro under some kind of control can take a lot of work and some time, but with a good healthcare team, a supportive network of family and/or friends and a positive, proactive attitude, it is possible.
This has been extracted from the Fibroaction website.
But there is still so much more that must be done! This is an encouraging blog to remind Fibromyalgia sufferers that you aren't alone and there is a collective constant force driving the medical profession to do more and not be complacent.
Another fantastic source of information comes from UK Fibromyalgia.com, and they write -
Do not let your medical provider suggest that fibromyalgia is "all in your mind",fibromyalgia has an ICD-9 CM code, is defined by authoritative medical references, and has FDA-approved medications with labeled indications for treatment of the disease.
If your doctor tells you this, quote from the 2008, 1,319 page, 4th edition of RAJ'S PRACTICAL MANAGEMENT OF PAIN, devoting a fifteen page section on FM.
From the first two paragraphs in the subsection, Pathogenesis, we find, "The cause of FM is still unknown. Theories regarding its cause have undergone a gradual transition from a psychiatric process, as some still view it, to a muscle disorder, as currently classified in the Medline Index, to a genetically determined central nervous system disorder of chronic widespread allodynia, neuro-endocrine function, and cytokine participation, as it should now be considered. The situation with FMS has changed dramatically in just a few years of concentrated research. Where FMS patients were often viewed as healthy complainers, without any real abnormalities, or considered to be depressed somatizers, the psychiatric model is no longer adequate. Abnormalities in neuro-chemical mediators of central nervous system nociceptive function are clearly present in ways consistent with the patterns of symptoms."
There is a lot of fantastic information and support for fibromyalgia on the internet. I use it as a constant source of information when I have to speak or write on anything related to Fibromyalgia. I am not a sufferer, so I can't rely on first hand experience. But it is advisable to read a lot of extracts to get a holistic view of all the treatments, experiences, research advances, for example.
It is important to have these support groups. Use their information. Promote their services and information. Make informed choices and decisions based on your readings from a variety of well informed support groups and charities.
- It's for instant relief for newly diagnosed sufferers. You know you aren't alone.
- A universal library of information for anyone needing more knowledge of this illness as a sufferer or some one wanting to understand more, like me.
- Plus of course there is the collective force and drive forward for more medical research from the charities and support groups.
Just another reason why its important to support my efforts high profiling Fibromyalgia