Today is May 12th which is the birthday of Florence Nightingale who has been thought to have fibromyalgia and / or ME. This was one of the main reasons for today becoming International Fibromyalgia Awareness day. It is a day that support groups and people with fibromyalgia around the globe come together to raise awareness of fibromyalia. Working together like this does and will make a difference for our tomorrow's.
Raise awareness today by talking to people about your fibromyalgia. Friends, workmates and strangers on the street are all people that could learn more about how we cope with this debilitating condition from day to day.
If you are on Twitter you could join others by using #fibro or #fibromyalgia hashtags or changing your status to tell people that it is International Fibromyalgia Awareness day.
For Awareness day we wanted to create something new. We have a challenge for you this year, it's one everyone can do, even from your bed.
The 'Because I want to' campaign is born.
Since getting Fibromyalgia we all have something we used to love doing but due to our health we are no longer able to do it. The challenge is to get as many people as possible to join in. Your families, friends and workmates can also join in.
We want you to print off a copy of our poster, in the space provided please write the one thing you'd really love to be able to do again. Friends, family, workmates can write what they want to see you doing again.
You can be standing up, sitting down or laying in bed. You can be dressed in a super hero costume or still in your pj's, it really doesn't matter.
Then get someone to take a photo of you holding your poster. Upload your poster to Twitter or Facebook and tweet/share the slogan that's on your poster. Don't worry, we'll give you full, easy to follow instructions further down.
We are raising £26,000 for research into fibromyalgia. Currently there is no research being done into the cause let alone the cure. There are no charities lobbying for medical companies or medical professionals to start that research. There are many charities providing invaluable support and documents for those with fibromyalgia or those needing guidance and education. Fibroduck Foundation has put together many resources to supplement that support but, more importantly, we will fundraise and campaign for research.
Read Claire's story and you will understand why this is research must happen. She has been robbed of her original life but started a new with many challenges because of her illness. Living with an "invisible illness" is a mental battle too. There are no clues such as a wheelchair, crutches, hearing aid, white stick for you to know she has a disability. Yet she has to make apologies for her lack of stamina, constant fatigue and pain, to be able to do or complete the most basic of of chores, let alone earn a living.
"I support Fibromyalgia research because I want to see you smile and make no apology"
For those who have no printer access:
Send us a pre paid stamped addresses envelope and we'll send you back a poster:
Fibroduck Foundation Po Box 575, Kemp House, 152-160 City Road, London, EC1V 2NX
Instructions:
1) Download our A4 sized poster free from our store, then print off a copy.
http://shop.fibroduckfoundation.com//index.php?route=product/product&product_id=74
2) In the space provided on the poster, fill in what you'd like to say. Then ask someone to take a photo of you holding your poster.
If you can manage to get your fibroduck in on the photo as well, then we can use the photos on both websites.
Then:
Twitter:
Attach your photo to a tweet, then add this wording to the tweet box:
I support @FibroduckFound + #Fibro research- because I want to .......... (fill in with the same words you put on your poster) #spoonies #may12th #fibroduck www.fibroduckfoundation.com
Please use the whole tweet and see if we can get trending again whilst raising awareness worldwide.
Facebook:
Post your photos to our walls and attach the following wording to the photo:
I support the Fibroduck Foundation and UK Fibromyalgia research. Because I want to ................ (fill in with the same words you put on your poster) ) #spoonies #may12th #@FibroduckFoundation www.fibroduckfoundation.com
You can start sending in your photos now. This campaign will continue running once awareness day is over, we hope many people will join in to help us show exactly why we need research here in the UK.
Happy May 12th
Fibroduck Team
Raise awareness today by talking to people about your fibromyalgia. Friends, workmates and strangers on the street are all people that could learn more about how we cope with this debilitating condition from day to day.
If you are on Twitter you could join others by using #fibro or #fibromyalgia hashtags or changing your status to tell people that it is International Fibromyalgia Awareness day.
For Awareness day we wanted to create something new. We have a challenge for you this year, it's one everyone can do, even from your bed.
The 'Because I want to' campaign is born.
Since getting Fibromyalgia we all have something we used to love doing but due to our health we are no longer able to do it. The challenge is to get as many people as possible to join in. Your families, friends and workmates can also join in.
We want you to print off a copy of our poster, in the space provided please write the one thing you'd really love to be able to do again. Friends, family, workmates can write what they want to see you doing again.
You can be standing up, sitting down or laying in bed. You can be dressed in a super hero costume or still in your pj's, it really doesn't matter.
Then get someone to take a photo of you holding your poster. Upload your poster to Twitter or Facebook and tweet/share the slogan that's on your poster. Don't worry, we'll give you full, easy to follow instructions further down.
We are raising £26,000 for research into fibromyalgia. Currently there is no research being done into the cause let alone the cure. There are no charities lobbying for medical companies or medical professionals to start that research. There are many charities providing invaluable support and documents for those with fibromyalgia or those needing guidance and education. Fibroduck Foundation has put together many resources to supplement that support but, more importantly, we will fundraise and campaign for research.
Read Claire's story and you will understand why this is research must happen. She has been robbed of her original life but started a new with many challenges because of her illness. Living with an "invisible illness" is a mental battle too. There are no clues such as a wheelchair, crutches, hearing aid, white stick for you to know she has a disability. Yet she has to make apologies for her lack of stamina, constant fatigue and pain, to be able to do or complete the most basic of of chores, let alone earn a living.
"I support Fibromyalgia research because I want to see you smile and make no apology"
For those who have no printer access:
Send us a pre paid stamped addresses envelope and we'll send you back a poster:
Fibroduck Foundation Po Box 575, Kemp House, 152-160 City Road, London, EC1V 2NX
Instructions:
1) Download our A4 sized poster free from our store, then print off a copy.
http://shop.fibroduckfoundation.com//index.php?route=product/product&product_id=74
2) In the space provided on the poster, fill in what you'd like to say. Then ask someone to take a photo of you holding your poster.
If you can manage to get your fibroduck in on the photo as well, then we can use the photos on both websites.
Then:
Twitter:
Attach your photo to a tweet, then add this wording to the tweet box:
I support @FibroduckFound + #Fibro research- because I want to .......... (fill in with the same words you put on your poster) #spoonies #may12th #fibroduck www.fibroduckfoundation.com
Please use the whole tweet and see if we can get trending again whilst raising awareness worldwide.
Facebook:
Post your photos to our walls and attach the following wording to the photo:
I support the Fibroduck Foundation and UK Fibromyalgia research. Because I want to ................ (fill in with the same words you put on your poster) ) #spoonies #may12th #@FibroduckFoundation www.fibroduckfoundation.com
You can start sending in your photos now. This campaign will continue running once awareness day is over, we hope many people will join in to help us show exactly why we need research here in the UK.
Happy May 12th
Fibroduck Team
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